10 years ago today I was giving birth for the first time, to a much wanted and much loved baby girl who was being stillborn at 28 weeks gestation. Never having birthed before, nor attended any antenatal classes, nor had any of our group of friends to have started their families, we were more than slightly scared of the process.
I was also scared of how she would look and was not really given much reassurance from staff, other than one consultant who supposed "she may look a little blue".
It was not easy to get labour going and I reacted badly to drugs such that I have no recollection of much of that weekend, being in a morphine filled haze. I know, because Marcus told me afterwards, that many midwives looked after me, some excellent, some not so. I do remember one midwife after the birth saying that she would pray for me which was all very well meaning but just filled me with rage. I did very politely say thank you though. In the years that have followed I have not always been so tolerant of other people's crass comments. Perhaps the morphine had not fully worn off.
My baby girl was almost delivered into the toilet but into a bedpan just in time. Such ignominy. She was perfectly formed and a miracle in that perfection. Tiny hands and feet with little nails, perfect face and eyes and eyelashes. The hospital did teeny hand and feet prints that I still have, and photographs too that I kept until I had a live baby to cuddle and felt the pictures of a dead baby were not necessary any longer.
Yet behind those perfect eyes and perfect face all was not perfect. Bethany (so named after Beth - the poorly one in Little Women - but "Beth" seemed too grown up), had gross brain abnormalities that had led to us having to make a decision as to whether to end the pregnancy at that point (28 weeks) or continue to a point when she would be delivered naturally and seeing events take their course. The prospect of watching a baby pass away and having to carry her for another 3 months for the privilege did not seem the easy option so we did take the heartbreaking decision to terminate at that time. Not everyone will agree with such actions - and that is fine by me for people to have their own opinions on what they would or wouldn't do in such circumstances - but I am who I am and that is the decision I took and I don't believe it is right to be condemned for making a decision that was made with love and for the best of intentions. I fully support euthanasia and this decision for me fell into the same parameters.
The autopsy results highlighted more brain abnormalities than had been shown on the scans, reinforcing our decision and it was suggested toxoplasmosis was the cause. Not that this made any sense to me as I had been aware and careful - and all my toxo tests came back negative yet the consultants just said you could get a false negative result. Frustrating that even when their own tests contradict their hypothesis, they then say the test can produce a false result.
It wasn't until another year and another baby (Eloise) and the same gross brain abnormalities to occur that toxoplasmosis was finally dismissed (apparently it cannot occur twice) and we were told we had an autosomal recessive gene that caused these abnormalities, and even given a name for it - Fowlers Syndrome. We were told we were the first diagnosed family in the UK, with one other in Europe and it was first identified as a condition in Australia where a lady lost several babies at term to Fowlers. None have ever survived birth. Such tragedies. And here we are being the first in the UK. Not a first we wanted to have. I would like to say we were also the last but sadly believe there has been another family also now diagnosed with Fowlers. My thinking is that there could be other families who were misdiagnosed with toxoplasmosis, just as we were, but in those families it was a one off and so the misdiagnosis lives on.
With Bethany I was going to return to work full time, my career was very important to me. The baby would go into a full time nursery at 6 weeks and I would return to work. Such a different person to the one typing these words now. Of course losing Bethany, my feelings did change slightly, such that with Eloise, I was going to take the full maternity leave allowed to me, returning to work part time, with the baby in a nursery part time. Losing Eloise was equally painful but without the shock element - my overwhelming feeling at the time was of intense sadness, loss and "Here we go again" resignation. And weariness - 'cos it just takes so long to grow a baby and I would have to start right back at the very beginning again.
But back to the beginning we did go and conceived again and this third baby was scanned weekly, then fortnightly after 30 weeks. After each scan I would tell people "she seemed ok at the last scan", because I felt things could go wrong at any time.
This baby, my last, was born at home. And true to form even this baby wasn't born breathing. She struggled and went blue and I thought I would see this baby die in front of my eyes. Ambulance and blue lights and she was off. Yet again I had birthed and my baby was removed from me. Once the placenta had been delivered I too was transferred to hospital. But didn't want to see her as what's the point when she is going to die anyway? I felt I was destined to never have a live baby to hold. But she did pull through. I was allowed to hold her when she was 2 days old. She came home when she was 5 days old.
And did I return to work and put this baby in daycare?
No - and I still haven't! This last baby is now 7 (and three quarters!), being home educated and I can't imagine how life could be any better. I am exhilarated by having the privilege to be the mother of this person who is funny and bright and an absolute joy to spend time with. And this joy has only come about through the tragic losses of Bethany and Eloise. That doesn't make me glad they died, but their deaths shaped my future in a far more positive way than their lives may have done, by changing who I am and what I want to achieve at my very core.
So much love to my firstborn, born 10 years ago today. May you rest peacefully. xx